Anakku Brain Tumor

Hello friends and readers.

Here is another book that I read recently. One of the reader post it to me (FOC). The book is written by the wife of popular group in Malaysia (Raihan).

I suggest you to read it in order to understand what is Brain Tumour. The book is available in Bahasa Malaysia only.

Cheers!!!

Telling It Staright

Hello friends and readers.

Just now, I attend a book signing ceremony by the author itself, which was located at MPH Subang Parade. The book is a compilation by the author itself from 2003 - 2012 and some of the articles was published in The Star.

I am reading the book and I suggest you all to read this book. 

 

Cheers!

Brain tumour?..Spinal tumour?..Neurofibromatosis...?

Hello friends and readers.

Here are some information's about neurofibromatosis. Hope it can help you to understand about neurofibromatosis.

Neurofibromatosis is complicated. It comes in many form and effect individuals differently. Yet, it is the most common disorder currently classified as a "rare disease".

Neurofibromatosis are classified as follows:

Neurofibromatosis type 1 (NF-1)

Neurofibromatosis type 1 (NF-1), formerly called von Recklinghausen's Disease or peripheral neurofibromatosis, is thought to occur in 1 of 2,500 births. The gene for NF-1 is on chromosome 17. NF-1 can be characterised by:

 

·         Multiple cafe-au-lait coloured spots on skin
·         Tumours of varying sizes on or under the skin
·         Lisch nodules on the iris of the eyes
·         Freckling in the underarm or groin area
·         Possible learning disabilities
·         Possible bone deformities, including scoliosis
·         Possible optic glioma
·         Possible family history of NF
·         Symptoms sometimes present at birth

 

Neurofibromatosis type 2 (NF-2)

Neurofibromatosis type 2 (NF-2 or bilateral acoustic NF) Is estimated to occur in 1 of 30,000 births. The gene for NF-2 is on chromosome 22. NF-2 can be characterised by:

·         vestibular schwannomas on both hearing nerves, often resulting in hearing loss and/or balance problems

·         cataracts or other visual problems at an early age
·         symptoms can appear as early as 2 years, but usually during or after puberty
·         other tumours of the central nervous system including the brain and spinal cord tumours of the skin.

 

Schwannomatosis

Schwannomatosis is the most recently recognised form of neurofibromatosis. It causes multiple schwannomas (nerve sheath tumours) to form on the central nervous system and chronic pan. No tumours on the vestibular nerves (as in NF-2) are evident.

The onset of symptoms is usually at puberty or older for both males and females. The precise genetic mechanism of schwannomatosis is unknown at this time.

 

Thank you very much to you

Hello friends and readers.

I feel bless this morning. In fact, everyday! I must be thankful to Allah for all the times, the moments that I have now, which I can breath as usual, even until today and this moment. I feel bless that I still can walk, I can run (with cats), I can sleep..etc.

Hearing test

Hello friends and readers.

Last week, I went to hospital for the doctor's appointment and hearing test. Hearing test was carried out for the purpose of to assess my hearing level after the surgery. I am aware of it already as the doctor at HEI informed it to me before the surgery.

The test showed a total loss of hearing at the right side. I am single sided deaf. I am bless that the left side of my hearing is still considered ok (lah).

The doctor suggested hearing aids & etc. It means, there will be a surgery. The hearing aids is not the normal ones as it involve surgery. I didn't make any decision yet so far as the hearing aids will cost about RM35,XXX (plus minus). The issue is not the cost of the hearing aid *** but also about the future.

My future is very uncertain now. The doctor suggested to me to wait first in order to look and to see the hearing level on my left ear, and monitor it through MRI scan. I still have a constant doctor's appointment in order to monitor my health. I have booked an appointment for MRI scan already, and because the MRI scan is expensive, I need to save certain amount of money.

I still can hear bird chirping, the cats is meowing, the TV, the knocking sound of the door (as my cats always like to bamm the door for no purpose reason). Enjoy the moments!

Cheers!!

USA Journal

Hello friends and readers. How are you guys doing today? I hope everything is good.

My trip to USA last year (October 2011) brings an unforgettable moments and memories to me. Individuals, groups and organisations have come forward and give the amount of helps that I myself cannot imagine it.

I still remember, a group of volunteer came over to my house for a visit in multiple times. The amount of efforts of the group, is countless. In fact, I cannot imagine the amount of support that this group has given to me, including in Malaysia and my trip to Los Angeles. They came to visit me before and after my trip! (Even in the hospital, ICU and also the guest center)

Check out the following link and you may know who I am talking about.

http://www.us.tzuchi.org/us/en/images/stories/Publications/e-books/us_journal/2012Fall/Download/2012Fall.pdf

Last week, this organisation was featured in Majalah 3 (TV3), on Saturday night (July, 7), with a topic called "Silent Mentor". When I saw it on TV, and the colour of their clothes, ahhh... I know it already. I stick in front of the TV until the end! They have their own university, which is for the purpose of the medical students to learn, do research and to study about approaches for certain illness and medication.

Love them very much! My visit to their headquarters have open up a story about this group, where do they start, how they started from an individual to large organisation and what makes them different from other organisation.

Cheers!

Signing Language class

Hello. How are you guys doing today? Hope you all are in good conditions.

Hmm.. You probably question what are these photos are all about.

Last Saturday, I attended a signing language class at Damansara Perdana. You may check the link at www.dibcoffeesofhawaii.org

There are many other signing language class in Malaysia. However, the ambiance of this restaurant are very different because it is totally run by those who are totally deaf. You probably want to now where this shop is located. Check out the link for further information. There will be an address & a map to the outlet and many more. You may have your drink or try the food.

Ahh.. I forgot to add. OKU can get 15% discount off on beverages from 9th July 2012 to 30th July 2012! What are you waiting for? Get it now!

Cheers!