Thursday, 17 May 2012

NF Fancy Dress Party in conjunction with World NF Awareness

Hello guys, readers and friends.

How are you today? I hope you are in good health.

Last nite, I went to NF Fancy Dress Party, a small gathering comprises of NF patients in Malaysia. Not all can come for the gathering. We gathered around 8pm at Mc Donald restaurant. Most of us were really excited to know about who is joining, and we kept on sharing information about our name, our personal life & etc.

I really hope that this small gathering will actually become a small contribution to all of us, and the community too, starting with who we are, and what is NF. The truth is, this small gathering brings more motivation to us and people who sees us during the gathering. I'm sure you guys agree with me.

Below are some pictures that I have for you. Enjoy it!

Monday, 14 May 2012

Vestibular Exercises

Dear friends and readers.

Ever since this blog was created last year (to raise funds for my surgery), I also hope that this personal blog will help you in your way, to become more healthier person. I do hope that with this smallest changes that I do will help the people out there and the community too.

The following exercises is created to help a person to overcome dizziness, vertigo and imbalance. Maybe you should try it!

First question, how do you know that you have the feeling of vertigo or dizziness. Well my friends, you might feel it like you see that the earth are spinning, you might feel that you want to vomit after spinning your head. One reasons of that feeling is because of the blood circulation is not going so well during the time. Although I am not a medical practitioner, I am dare to say it because I'd feel it already.

The process of getting over dizziness or vertigo is the same as when a sailor gets his or her "sea legs", or a dancer learns to spin around without getting dizzy. The only way that the balance system can overcome dizziness and imbalance is by practising the movements and situations that cause dizziness. The aim of this exercises is to give the balance system all the practice it needs at a time and place where you will not be distracted.

My cats will see me doing this. (Not everyday, hehehe...lazy) At first, my cats feel horror to see me. I know it by looking at their eyes, and they kept meowing. Now, when I do the exercises, all of my cats feels nothing and they will tend to sleep.

Make sure you can do the exercises with your strength and may be you need a help from a friend/family. Stop doing the exercises if you experience:

1) Sharp, severe or prolonges pain in you neck, head or ear.
2) Sensation of fullness, deffness, or noises in the ear.
3) Fainting, loss of concsiousness,  blacking out or double vision.
4) Numbness, weakness, or tingling in your arms or legs.

The exercises are as follows:-

1) Sit upright with your legs out in front of you. Quickly lie straight down on your back. Wait for your symptoms to calm down, and then sit back up again. Repeat 2 - 3 times. When you do this exercise without dizziness, you can move to advance stage. Try your head turned first to the left and then to the right.

2) Sitting in a chair, bend forward and bring your head down halfway towards your knees. Wait for your symptoms to calm down, and then sit back again. Repeat 2 - 3 times. You can move to advance stage when you can do the exercise without dizziness. Try it with your head turned first to the left and then to the right.

3) Sitting in a chair, quickly turn your head and eyas from left to right, 5 times in each direction, as if you were watching a tennis match. Try to focus on an object in each direction. Stop, wait for your symptoms to go away and repeat 3 times. When you can do the exercise without dizziness, try doing this while you are standing up. This is advance level. (As if you are in a stadium-rite!)

4) Repeat exercise 3, but look up and down instead of left and right. Try do this exercise while you are standing up.

5) Do exercise 3 with your eyes closed. (Do not do this exercise standing up)

6) Do exercise 4 with your eyes closed. (Do not do this exercise standing up)

7) Sit in a chair with one arm outstretched in front of you with your finger pointing up. Stare at your finger and turn your head to the left and right 10 times. Start slowly and gradually speed up. Repeat 3 times ( As if you are aiming something)

8) Repeat exercise 7, but hold your finger sideways and move your head up and down.

Thursday, 3 May 2012

What is Neurofibromatosis?

Dear friends and readers.

I downloaded the above video from youtube with the permission of the owner, Ms Kristie Hopkins, from USA.

I hope, the above video will help you more and understand what Neurofibromatosis is.

Life is full with challenges guys. Live your life to the fullest and thrive it. Everyday is a new challenge, to me and to all people in this world. No matter what challenges you faces, the challenges actually makes you become stronger and stronger everyday.

Cheers guys!