Tuesday, 27 March 2012

New Link

I have added another link called Neuro Foundation, UK. There are lots of information’s that may help you to understand more about NF and brain tumors. There is information for parent and teachers, as well as what to expect in the future, and also information for parent of what/how to tell to the teachers. Check the link! Cheers!

Wednesday, 21 March 2012

What to do if do nothing with AN?

Acoustic neuroma is a slow-growing tumor. It is a benign tumor, means that it will not metasize to the other part of the bodies. The AN can be life-threatening if it is not well treated.

The doctors/physicians may suggest to you to "watch and wait" through annual MRI Scan & etc. Here is the part that most people dislike, i.e., "watch & wait", because it involves uncertainty of future and a cost associated to it. It may growth or there is no growth. It may also shrink.

If the tumor is small, then most doctor will suggest to "watch and wait" approach, through annual MRI Scan. However, it depends on the symptoms that you are facing with. Sometimes, even though it is small, but the symptoms are severe, than the surgeons might suggest for surgery/radiation to slow the tumor from growing or get rid of them. All depends on your individual cases. Second opinion is possible.

Those people who are under "watch & wait"; you have to monitor yourself for your health. Watch out for your blood pressure, your lifestyle, your nutrition’s/diet, exercises & etc.

1) Don't worry too much because it might increase blood pressure. If you are stress, you know what best for you.

2) Your lifestyle. Try to live happily. You can have a pet (because it is good for you!), gardening, watch video, sings out loud (hehehehe) and anything that makes you happy.

3) Your diet. You can eat anything you like, but try to balance it. Have a good/balance diet or a good immune system for your body. Eat fruits (such as Apple & etc) and vegetables (such as Broccoli & Etc); eat supplementary for your diet.

4) Exercises/sports - such as Yoga, Tai Chi, martial arts, dancing, bowling, ping pong, cycling and etc. It depends on your balance. Most activities are good for you because it involves balance, focus and etc, but it depends on your priority. If you like games, you may try Nintendo-Wii, a game that involves balancing, focusing and coordinating.

After all, it depends on you!

"Tai Chi"

Thursday, 8 March 2012

What to do if you have the symptoms?

There are many things you need to consider if there are symptoms of brain tumor, especially Acoustic Neuroma. Headaches/Hearing loss is one of the symptoms, however it is difficult to know the reasons as hearing loss can be caused by other factor.

1) Do not panic of the symptoms, because if you get panic, you may not be able to think wisely.

2) Go and see a doctor. If you go to see gp, they will give you a medication based on what you tell them. If the problems (symptoms) still persist, then you might need to see another doctor. Perhaps, the doctor at the clinic may refer you to a hospital.

3) When you are in the hospital, tell the doctor about your conditions. When you start feeling the symptoms, i.e, the date, how frequent the symptoms is, family history, what medication do you take, your allergy /reaction to certain drugs or medications.

4) Do some test such as: (Any of it or ALL). Some of the tests are required by the doctor. The tests are:
(a) Hearing test
(b) Audio logical test
(c) Biopsies (as when needed/requested by the doctor)
(d) Laboratories test
(d) Scan (X-Ray, CT scan or MRI Scan)
(e) Etc, which the doctor will request for it

5) From the above tests, the doctor will know the outcome. If the results of the scan show that there is a tumor, then, DON'T PANIC.

6) You might need time for yourself to think and to plan on what to do next, get advices from your friends and most important is to get the advice from those who have the knowledge, and a person who experience it (another patient). If possible get second opinion from another doctor, (the doctor will rely on the scan and the tests).

7) Do a lot of reading about your illness. You can read it by doing a lot of research on the web, or books and etc, because reading from these sources can help you to reduce the feeling of anxiety and it might also helps you to know what will happen to you in the near future.

P/s: I added another link for you guys, ie, (What is Neurofibromatosis)