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Showing posts with label Acoustic Neuroma. Show all posts
Showing posts with label Acoustic Neuroma. Show all posts

Thursday, 3 May 2012

What is Neurofibromatosis?



Dear friends and readers.

I downloaded the above video from youtube with the permission of the owner, Ms Kristie Hopkins, from USA.

I hope, the above video will help you more and understand what Neurofibromatosis is.

Life is full with challenges guys. Live your life to the fullest and thrive it. Everyday is a new challenge, to me and to all people in this world. No matter what challenges you faces, the challenges actually makes you become stronger and stronger everyday.

Cheers guys!

Tuesday, 27 March 2012

New Link

I have added another link called Neuro Foundation, UK. There are lots of information’s that may help you to understand more about NF and brain tumors. There is information for parent and teachers, as well as what to expect in the future, and also information for parent of what/how to tell to the teachers. Check the link! Cheers!

Wednesday, 21 March 2012

What to do if do nothing with AN?

Acoustic neuroma is a slow-growing tumor. It is a benign tumor, means that it will not metasize to the other part of the bodies. The AN can be life-threatening if it is not well treated.

The doctors/physicians may suggest to you to "watch and wait" through annual MRI Scan & etc. Here is the part that most people dislike, i.e., "watch & wait", because it involves uncertainty of future and a cost associated to it. It may growth or there is no growth. It may also shrink.

If the tumor is small, then most doctor will suggest to "watch and wait" approach, through annual MRI Scan. However, it depends on the symptoms that you are facing with. Sometimes, even though it is small, but the symptoms are severe, than the surgeons might suggest for surgery/radiation to slow the tumor from growing or get rid of them. All depends on your individual cases. Second opinion is possible.

Those people who are under "watch & wait"; you have to monitor yourself for your health. Watch out for your blood pressure, your lifestyle, your nutrition’s/diet, exercises & etc.

1) Don't worry too much because it might increase blood pressure. If you are stress, you know what best for you.

2) Your lifestyle. Try to live happily. You can have a pet (because it is good for you!), gardening, watch video, sings out loud (hehehehe) and anything that makes you happy.

3) Your diet. You can eat anything you like, but try to balance it. Have a good/balance diet or a good immune system for your body. Eat fruits (such as Apple & etc) and vegetables (such as Broccoli & Etc); eat supplementary for your diet.

4) Exercises/sports - such as Yoga, Tai Chi, martial arts, dancing, bowling, ping pong, cycling and etc. It depends on your balance. Most activities are good for you because it involves balance, focus and etc, but it depends on your priority. If you like games, you may try Nintendo-Wii, a game that involves balancing, focusing and coordinating.

After all, it depends on you!

"Tai Chi"

Wednesday, 29 June 2011

Doctor's appointment

Hello guys.. How are you?

Last day, I mean on Tuesday, I met with a doctor at a hospital. The doctor knows about my case and allows me to ask any doubt that may happen in the near future.

He said to me that I must go for second operation. The most is, this year. I also submitted the CD of my MRI's to several doctors in Malaysia, Russia, Japan and United State. My case got the attention because of the blog and a help from my fellow friend. They are willing to do the operation. It is a matter of experience and expertise.

The doctor also asked me where I want to do the operation because it is very high risk. So, I told him that I want to go to U.S and meet Dr Rick Friedman (House Ear Clinic). He willing to help me to minimise my doubt about Acoustic Neuroma and reduce some of my burden. In fact I also discuss with him about insurance. Bless my doctor, for all the helps.

Dr. Rick had emailed me the cost of operation which will include the stay in the hospital. All I have to do is to go to US.