Monday, 28 November 2011

A charitable Foundation

Hello guys! How are you guys...? I am in good conditions.

My friend, Yvonne Foong, is setting up a public charitable foundation. The purpose of the foundation is to assist other NF patients acquire medical treatments.

There are costs involve in every medical. I look it happened right in front of my eyes, as it involve life threatening. I will support Yvonne and helping her for this foundation.

There are some procedures involve in setting up a public charitable foundation in Malaysia. It requires an experienced company secretary in this area. If you have any recommendations relating to this foundation, please write it to or you can read it through her website at

Friday, 25 November 2011

Another case of Acoustic Neuroma

Hello guys! How are you today? I am good.

Well guys, ever since my story came out in TV3, NTV7, Berita Harian, I've received a lot of calls and messages asking for help, what to do, opinions and etc, some of them said to me with encouraging words.

Some of them helps me bought some stuff and helps me to raise funds for my brain tumour surgery. Thank you to all. Because of your helps, whether directly/indirectly, it helps me a lot and I can't imagine it if it was without you guys helped me.

I also received a message from this one malay guy (after my news came out in Berita Harian) that her wife is having the same problems like me. His wife can’t move to the washroom without the help of a wheelchair, she cannot move a lot, and she can eat slimy food that helps the food to go through her throat. Luckily, she can breathe as usual. Her wife also went to HUKM before and the same answer from the doctor there that they can't remove the entire tumour because it is very dangerous and bla bla bla bla bla......

He asked me about my opinions (about his wife). I didn't see his wife personally. He did ask me why I am going to USA. I told him that time, I am going to USA because of my future, minimises risks, and in fact, no doctors in Malaysia can remove the tumour successfully.

Last week after a few days back to Malaysia, I received a call from him that he is taking his wife to USA, LA, to see Dr Rick Friedman and to have a surgery. This guy can afford to go there with a short notice. This guy has made rite decision and the decision also comes from his wife too! He and his wife read about me. In fact, he also read about Yvonne's story, Yvonne's journey to USA, and her courage to fight and battling the tumour and her support to others. I think we have showed him the best place and best doctor in this case. You know what I'm saying.

Today, this guy is already going to KLIA, with his wife and son, to have the surgery next week (29 November 2011). Have a safe trip and journey to Encik Shuhaimi Abu Bakar and his wife Puan Siti Nur Hidayah Abdullah (May everything is going well for you!!!). May ALLAH bless you!!!!

Monday, 21 November 2011

I am resting

Hello guys! How are you?

I am back already since last week (14 November). Last week, I feel a bit sleepy and go to bed a bit early, around 9-10 o'clock. I watch my cats, and they know that I am back already!!!

The tumor has been successfully removed 100%. I can eat as usual, can breath as usual, can take bath as usual, and read as usual. I can drive already. I need to take good care of my right eye because of the previous facial paralysis that effect my vision, my handwriting, my right hand and my right leg.

I still remember (HUKM), previously, I cannot walk, and eat in ICU. It takes about three weeks to one month for me to start walking as usual. I still use a wheelchair to help me to walk, go to washroom, or my room. I can't move a lot at that time because I still feel imbalance.

After that three weeks, I started my physio at HUKM for physical/walking therapy, working therapy, and speech therapy. At that time, there were some words that I cannot say. Actually, the physiotherapist have done a good job in their field. They helped a lot of most patients already.

When I have my second surgery in LA, USA, I can even eat and walk in ICU. And after I've moved to normal ward, (I am in ICU for about three days) I can climb the stairs already, speak as usual, walk as usual, eat as usual, go to the bathroom as usual, without the hands of the nurse/my mother. I am in the hospital (Saint Vincent Medical Center) for 5 days only!

How they do it? How they can minimise the risk of post surgery? Although there were CSF leaks after the surgery. I believe that they have the techniques and expertise that we can learn. (If Malaysian Doctor want to learn la...)

Our country lack of such expertise and experiences in this field. What we have now are the techniques that most Malaysian hospitals learned from them a long time ago and cultivate it in our country.

I will upload the photo for you guys once I've settle with the internet problems. Believe in ALLAH S.W.T!!! Take good care guys!!!!!