Tuesday, 17 April 2012

Neurofibromatosis Awareness Month 2012

Hello friends and readers.

May 2012 has been selected as World NF Awareness month for 2012. Guess what will happen in the month of May 2012? There will be many activities involved.

One of the activities will be Fancy Dress for NF, on Thursday, May 17th, 2012. The aim of this event is to create awareness Neurofibromatosis (NF1, NF2, NF3 & schwannomatosis) and to all work together to stop (& find cure) this common genetic condition being invisible and start it being a household name. You may click on this link and to know more about it:

With this annual event it will get bigger and better with more people involved each year, and wouldn't it be great to say you were involved from the beginning!

All you need to do is wear Fancy Dress on the 17th of May 2012 and tell people why. The more people who wear fancy dress (especially if you do it in a group somewhere people will see you) the more chance we have of having NF recognised and getting press. After the event please e-mail a photo of you in fancy dress to, the pictures will then be put to a vote with the top twelve photos being selected for a 2013 calendar.

1 comment:

  1. i'm an NF patient too...i just found out your blog...