Hello friends and readers.
Last week, I went to hospital for the doctor's appointment and hearing test. Hearing test was carried out for the purpose of to assess my hearing level after the surgery. I am aware of it already as the doctor at HEI informed it to me before the surgery.
The test showed a total loss of hearing at the right side. I am single sided deaf. I am bless that the left side of my hearing is still considered ok (lah).
The doctor suggested hearing aids & etc. It means, there will be a surgery. The hearing aids is not the normal ones as it involve surgery. I didn't make any decision yet so far as the hearing aids will cost about RM35,XXX (plus minus). The issue is not the cost of the hearing aid *** but also about the future.
My future is very uncertain now. The doctor suggested to me to wait first in order to look and to see the hearing level on my left ear, and monitor it through MRI scan. I still have a constant doctor's appointment in order to monitor my health. I have booked an appointment for MRI scan already, and because the MRI scan is expensive, I need to save certain amount of money.
I still can hear bird chirping, the cats is meowing, the TV, the knocking sound of the door (as my cats always like to bamm the door for no purpose reason). Enjoy the moments!
Cheers!!
Tuesday, 11 September 2012
Monday, 16 July 2012
USA Journal
Hello friends and readers. How are you guys doing today? I hope everything is good.
My trip to USA last year (October 2011) brings an unforgettable moments and memories to me. Individuals, groups and organisations have come forward and give the amount of helps that I myself cannot imagine it.
I still remember, a group of volunteer came over to my house for a visit in multiple times. The amount of efforts of the group, is countless. In fact, I cannot imagine the amount of support that this group has given to me, including in Malaysia and my trip to Los Angeles. They came to visit me before and after my trip! (Even in the hospital, ICU and also the guest center)
Check out the following link and you may know who I am talking about.
http://www.us.tzuchi.org/us/en/images/stories/Publications/e-books/us_journal/2012Fall/Download/2012Fall.pdf
Last week, this organisation was featured in Majalah 3 (TV3), on Saturday night (July, 7), with a topic called "Silent Mentor". When I saw it on TV, and the colour of their clothes, ahhh... I know it already. I stick in front of the TV until the end! They have their own university, which is for the purpose of the medical students to learn, do research and to study about approaches for certain illness and medication.
Love them very much! My visit to their headquarters have open up a story about this group, where do they start, how they started from an individual to large organisation and what makes them different from other organisation.
Cheers!
My trip to USA last year (October 2011) brings an unforgettable moments and memories to me. Individuals, groups and organisations have come forward and give the amount of helps that I myself cannot imagine it.
I still remember, a group of volunteer came over to my house for a visit in multiple times. The amount of efforts of the group, is countless. In fact, I cannot imagine the amount of support that this group has given to me, including in Malaysia and my trip to Los Angeles. They came to visit me before and after my trip! (Even in the hospital, ICU and also the guest center)
Check out the following link and you may know who I am talking about.
http://www.us.tzuchi.org/us/en/images/stories/Publications/e-books/us_journal/2012Fall/Download/2012Fall.pdf
Last week, this organisation was featured in Majalah 3 (TV3), on Saturday night (July, 7), with a topic called "Silent Mentor". When I saw it on TV, and the colour of their clothes, ahhh... I know it already. I stick in front of the TV until the end! They have their own university, which is for the purpose of the medical students to learn, do research and to study about approaches for certain illness and medication.
Love them very much! My visit to their headquarters have open up a story about this group, where do they start, how they started from an individual to large organisation and what makes them different from other organisation.
Cheers!
Sunday, 8 July 2012
Signing Language class
.jpg)
.jpg)
Hello. How are you guys doing today? Hope you all are in good conditions.
Hmm.. You probably question what are these photos are all about.
Last Saturday, I attended a signing language class at Damansara Perdana. You may check the link at www.dibcoffeesofhawaii.org
There are many other signing language class in Malaysia. However, the ambiance of this restaurant are very different because it is totally run by those who are totally deaf. You probably want to now where this shop is located. Check out the link for further information. There will be an address & a map to the outlet and many more. You may have your drink or try the food.
Ahh.. I forgot to add. OKU can get 15% discount off on beverages from 9th July 2012 to 30th July 2012! What are you waiting for? Get it now!
Cheers!
Sunday, 3 June 2012
Hearing Aids
Guys, last week I got a call from the Welfare Department that my recent application for the allowance of my hearing aid is approved. I've been applying for it by submitting my application, together with the doctor's report and etc since February 2012, and I is already approved! The application is to help me to reduce my burden. Thanks to them!
Now, the next step is to get the hearing aids. This hearing aids is to help me to hear clearly as I lost my hearing on the right ear already since many years ago. Although I don't know my own future and the level of uncertainty, at least I try to survive now and the mortality rate that I have now would also help me to be more courage.
I believe that the challenges will always come to you. The challenge may be small or may be huge. Allah will always test you, in what ever condition you are. With the help of the people, they will come and listen to your problems.
I don't know the level of strength that I have. The challenges and the experiences makes me become more courage. With this strength, I hope to help more people out there to overcome the fear that they have.
Cheers!
Now, the next step is to get the hearing aids. This hearing aids is to help me to hear clearly as I lost my hearing on the right ear already since many years ago. Although I don't know my own future and the level of uncertainty, at least I try to survive now and the mortality rate that I have now would also help me to be more courage.
I believe that the challenges will always come to you. The challenge may be small or may be huge. Allah will always test you, in what ever condition you are. With the help of the people, they will come and listen to your problems.
I don't know the level of strength that I have. The challenges and the experiences makes me become more courage. With this strength, I hope to help more people out there to overcome the fear that they have.
Cheers!
Thursday, 17 May 2012
NF Fancy Dress Party in conjunction with World NF Awareness
Hello guys, readers and friends.
How are you today? I hope you are in good health.
Last nite, I went to NF Fancy Dress Party, a small gathering comprises of NF patients in Malaysia. Not all can come for the gathering. We gathered around 8pm at Mc Donald restaurant. Most of us were really excited to know about who is joining, and we kept on sharing information about our name, our personal life & etc.
I really hope that this small gathering will actually become a small contribution to all of us, and the community too, starting with who we are, and what is NF. The truth is, this small gathering brings more motivation to us and people who sees us during the gathering. I'm sure you guys agree with me.
Below are some pictures that I have for you. Enjoy it!
How are you today? I hope you are in good health.
Last nite, I went to NF Fancy Dress Party, a small gathering comprises of NF patients in Malaysia. Not all can come for the gathering. We gathered around 8pm at Mc Donald restaurant. Most of us were really excited to know about who is joining, and we kept on sharing information about our name, our personal life & etc.
I really hope that this small gathering will actually become a small contribution to all of us, and the community too, starting with who we are, and what is NF. The truth is, this small gathering brings more motivation to us and people who sees us during the gathering. I'm sure you guys agree with me.
Below are some pictures that I have for you. Enjoy it!
Monday, 14 May 2012
Vestibular Exercises
Dear friends and readers.
Ever since this blog was created last year (to raise funds for my surgery), I also hope that this personal blog will help you in your way, to become more healthier person. I do hope that with this smallest changes that I do will help the people out there and the community too.
The following exercises is created to help a person to overcome dizziness, vertigo and imbalance. Maybe you should try it!
First question, how do you know that you have the feeling of vertigo or dizziness. Well my friends, you might feel it like you see that the earth are spinning, you might feel that you want to vomit after spinning your head. One reasons of that feeling is because of the blood circulation is not going so well during the time. Although I am not a medical practitioner, I am dare to say it because I'd feel it already.
The process of getting over dizziness or vertigo is the same as when a sailor gets his or her "sea legs", or a dancer learns to spin around without getting dizzy. The only way that the balance system can overcome dizziness and imbalance is by practising the movements and situations that cause dizziness. The aim of this exercises is to give the balance system all the practice it needs at a time and place where you will not be distracted.
My cats will see me doing this. (Not everyday, hehehe...lazy) At first, my cats feel horror to see me. I know it by looking at their eyes, and they kept meowing. Now, when I do the exercises, all of my cats feels nothing and they will tend to sleep.
Make sure you can do the exercises with your strength and may be you need a help from a friend/family. Stop doing the exercises if you experience:
1) Sharp, severe or prolonges pain in you neck, head or ear.
2) Sensation of fullness, deffness, or noises in the ear.
3) Fainting, loss of concsiousness, blacking out or double vision.
4) Numbness, weakness, or tingling in your arms or legs.
The exercises are as follows:-
1) Sit upright with your legs out in front of you. Quickly lie straight down on your back. Wait for your symptoms to calm down, and then sit back up again. Repeat 2 - 3 times. When you do this exercise without dizziness, you can move to advance stage. Try your head turned first to the left and then to the right.
2) Sitting in a chair, bend forward and bring your head down halfway towards your knees. Wait for your symptoms to calm down, and then sit back again. Repeat 2 - 3 times. You can move to advance stage when you can do the exercise without dizziness. Try it with your head turned first to the left and then to the right.
3) Sitting in a chair, quickly turn your head and eyas from left to right, 5 times in each direction, as if you were watching a tennis match. Try to focus on an object in each direction. Stop, wait for your symptoms to go away and repeat 3 times. When you can do the exercise without dizziness, try doing this while you are standing up. This is advance level. (As if you are in a stadium-rite!)
4) Repeat exercise 3, but look up and down instead of left and right. Try do this exercise while you are standing up.
5) Do exercise 3 with your eyes closed. (Do not do this exercise standing up)
6) Do exercise 4 with your eyes closed. (Do not do this exercise standing up)
7) Sit in a chair with one arm outstretched in front of you with your finger pointing up. Stare at your finger and turn your head to the left and right 10 times. Start slowly and gradually speed up. Repeat 3 times ( As if you are aiming something)
8) Repeat exercise 7, but hold your finger sideways and move your head up and down.
Ever since this blog was created last year (to raise funds for my surgery), I also hope that this personal blog will help you in your way, to become more healthier person. I do hope that with this smallest changes that I do will help the people out there and the community too.
The following exercises is created to help a person to overcome dizziness, vertigo and imbalance. Maybe you should try it!
First question, how do you know that you have the feeling of vertigo or dizziness. Well my friends, you might feel it like you see that the earth are spinning, you might feel that you want to vomit after spinning your head. One reasons of that feeling is because of the blood circulation is not going so well during the time. Although I am not a medical practitioner, I am dare to say it because I'd feel it already.
The process of getting over dizziness or vertigo is the same as when a sailor gets his or her "sea legs", or a dancer learns to spin around without getting dizzy. The only way that the balance system can overcome dizziness and imbalance is by practising the movements and situations that cause dizziness. The aim of this exercises is to give the balance system all the practice it needs at a time and place where you will not be distracted.
My cats will see me doing this. (Not everyday, hehehe...lazy) At first, my cats feel horror to see me. I know it by looking at their eyes, and they kept meowing. Now, when I do the exercises, all of my cats feels nothing and they will tend to sleep.
Make sure you can do the exercises with your strength and may be you need a help from a friend/family. Stop doing the exercises if you experience:
1) Sharp, severe or prolonges pain in you neck, head or ear.
2) Sensation of fullness, deffness, or noises in the ear.
3) Fainting, loss of concsiousness, blacking out or double vision.
4) Numbness, weakness, or tingling in your arms or legs.
The exercises are as follows:-
1) Sit upright with your legs out in front of you. Quickly lie straight down on your back. Wait for your symptoms to calm down, and then sit back up again. Repeat 2 - 3 times. When you do this exercise without dizziness, you can move to advance stage. Try your head turned first to the left and then to the right.
2) Sitting in a chair, bend forward and bring your head down halfway towards your knees. Wait for your symptoms to calm down, and then sit back again. Repeat 2 - 3 times. You can move to advance stage when you can do the exercise without dizziness. Try it with your head turned first to the left and then to the right.
3) Sitting in a chair, quickly turn your head and eyas from left to right, 5 times in each direction, as if you were watching a tennis match. Try to focus on an object in each direction. Stop, wait for your symptoms to go away and repeat 3 times. When you can do the exercise without dizziness, try doing this while you are standing up. This is advance level. (As if you are in a stadium-rite!)
4) Repeat exercise 3, but look up and down instead of left and right. Try do this exercise while you are standing up.
5) Do exercise 3 with your eyes closed. (Do not do this exercise standing up)
6) Do exercise 4 with your eyes closed. (Do not do this exercise standing up)
7) Sit in a chair with one arm outstretched in front of you with your finger pointing up. Stare at your finger and turn your head to the left and right 10 times. Start slowly and gradually speed up. Repeat 3 times ( As if you are aiming something)
8) Repeat exercise 7, but hold your finger sideways and move your head up and down.
Thursday, 3 May 2012
What is Neurofibromatosis?
Dear friends and readers.
I downloaded the above video from youtube with the permission of the owner, Ms Kristie Hopkins, from USA.
I hope, the above video will help you more and understand what Neurofibromatosis is.
Life is full with challenges guys. Live your life to the fullest and thrive it. Everyday is a new challenge, to me and to all people in this world. No matter what challenges you faces, the challenges actually makes you become stronger and stronger everyday.
Cheers guys!
Subscribe to:
Posts (Atom)