Tuesday, 27 March 2012
New Link
I have added another link called Neuro Foundation, UK.
There are lots of information’s that may help you to understand more about NF and brain tumors.
There is information for parent and teachers, as well as what to expect in the future, and also information for parent of what/how to tell to the teachers.
Check the link!
Cheers!
Wednesday, 21 March 2012
What to do if do nothing with AN?
Acoustic neuroma is a slow-growing tumor. It is a benign tumor, means that it will not metasize to the other part of the bodies. The AN can be life-threatening if it is not well treated.
The doctors/physicians may suggest to you to "watch and wait" through annual MRI Scan & etc. Here is the part that most people dislike, i.e., "watch & wait", because it involves uncertainty of future and a cost associated to it. It may growth or there is no growth. It may also shrink.
If the tumor is small, then most doctor will suggest to "watch and wait" approach, through annual MRI Scan. However, it depends on the symptoms that you are facing with. Sometimes, even though it is small, but the symptoms are severe, than the surgeons might suggest for surgery/radiation to slow the tumor from growing or get rid of them. All depends on your individual cases. Second opinion is possible.
Those people who are under "watch & wait"; you have to monitor yourself for your health. Watch out for your blood pressure, your lifestyle, your nutrition’s/diet, exercises & etc.
1) Don't worry too much because it might increase blood pressure. If you are stress, you know what best for you.
2) Your lifestyle. Try to live happily. You can have a pet (because it is good for you!), gardening, watch video, sings out loud (hehehehe) and anything that makes you happy.
3) Your diet. You can eat anything you like, but try to balance it. Have a good/balance diet or a good immune system for your body. Eat fruits (such as Apple & etc) and vegetables (such as Broccoli & Etc); eat supplementary for your diet.
4) Exercises/sports - such as Yoga, Tai Chi, martial arts, dancing, bowling, ping pong, cycling and etc. It depends on your balance. Most activities are good for you because it involves balance, focus and etc, but it depends on your priority. If you like games, you may try Nintendo-Wii, a game that involves balancing, focusing and coordinating.
After all, it depends on you!
"Tai Chi"
The doctors/physicians may suggest to you to "watch and wait" through annual MRI Scan & etc. Here is the part that most people dislike, i.e., "watch & wait", because it involves uncertainty of future and a cost associated to it. It may growth or there is no growth. It may also shrink.
If the tumor is small, then most doctor will suggest to "watch and wait" approach, through annual MRI Scan. However, it depends on the symptoms that you are facing with. Sometimes, even though it is small, but the symptoms are severe, than the surgeons might suggest for surgery/radiation to slow the tumor from growing or get rid of them. All depends on your individual cases. Second opinion is possible.
Those people who are under "watch & wait"; you have to monitor yourself for your health. Watch out for your blood pressure, your lifestyle, your nutrition’s/diet, exercises & etc.
1) Don't worry too much because it might increase blood pressure. If you are stress, you know what best for you.
2) Your lifestyle. Try to live happily. You can have a pet (because it is good for you!), gardening, watch video, sings out loud (hehehehe) and anything that makes you happy.
3) Your diet. You can eat anything you like, but try to balance it. Have a good/balance diet or a good immune system for your body. Eat fruits (such as Apple & etc) and vegetables (such as Broccoli & Etc); eat supplementary for your diet.
4) Exercises/sports - such as Yoga, Tai Chi, martial arts, dancing, bowling, ping pong, cycling and etc. It depends on your balance. Most activities are good for you because it involves balance, focus and etc, but it depends on your priority. If you like games, you may try Nintendo-Wii, a game that involves balancing, focusing and coordinating.
After all, it depends on you!
Thursday, 8 March 2012
What to do if you have the symptoms?
There are many things you need to consider if there are symptoms of brain tumor, especially Acoustic Neuroma. Headaches/Hearing loss is one of the symptoms, however it is difficult to know the reasons as hearing loss can be caused by other factor.
1) Do not panic of the symptoms, because if you get panic, you may not be able to think wisely.
2) Go and see a doctor. If you go to see gp, they will give you a medication based on what you tell them. If the problems (symptoms) still persist, then you might need to see another doctor. Perhaps, the doctor at the clinic may refer you to a hospital.
3) When you are in the hospital, tell the doctor about your conditions. When you start feeling the symptoms, i.e, the date, how frequent the symptoms is, family history, what medication do you take, your allergy /reaction to certain drugs or medications.
4) Do some test such as: (Any of it or ALL). Some of the tests are required by the doctor. The tests are:
(a) Hearing test
(b) Audio logical test
(c) Biopsies (as when needed/requested by the doctor)
(d) Laboratories test
(d) Scan (X-Ray, CT scan or MRI Scan)
(e) Etc, which the doctor will request for it
5) From the above tests, the doctor will know the outcome. If the results of the scan show that there is a tumor, then, DON'T PANIC.
6) You might need time for yourself to think and to plan on what to do next, get advices from your friends and most important is to get the advice from those who have the knowledge, and a person who experience it (another patient). If possible get second opinion from another doctor, (the doctor will rely on the scan and the tests).
7) Do a lot of reading about your illness. You can read it by doing a lot of research on the web, or books and etc, because reading from these sources can help you to reduce the feeling of anxiety and it might also helps you to know what will happen to you in the near future.
P/s: I added another link for you guys, ie, (What is Neurofibromatosis)
1) Do not panic of the symptoms, because if you get panic, you may not be able to think wisely.
2) Go and see a doctor. If you go to see gp, they will give you a medication based on what you tell them. If the problems (symptoms) still persist, then you might need to see another doctor. Perhaps, the doctor at the clinic may refer you to a hospital.
3) When you are in the hospital, tell the doctor about your conditions. When you start feeling the symptoms, i.e, the date, how frequent the symptoms is, family history, what medication do you take, your allergy /reaction to certain drugs or medications.
4) Do some test such as: (Any of it or ALL). Some of the tests are required by the doctor. The tests are:
(a) Hearing test
(b) Audio logical test
(c) Biopsies (as when needed/requested by the doctor)
(d) Laboratories test
(d) Scan (X-Ray, CT scan or MRI Scan)
(e) Etc, which the doctor will request for it
5) From the above tests, the doctor will know the outcome. If the results of the scan show that there is a tumor, then, DON'T PANIC.
6) You might need time for yourself to think and to plan on what to do next, get advices from your friends and most important is to get the advice from those who have the knowledge, and a person who experience it (another patient). If possible get second opinion from another doctor, (the doctor will rely on the scan and the tests).
7) Do a lot of reading about your illness. You can read it by doing a lot of research on the web, or books and etc, because reading from these sources can help you to reduce the feeling of anxiety and it might also helps you to know what will happen to you in the near future.
P/s: I added another link for you guys, ie, (What is Neurofibromatosis)
Thursday, 23 February 2012
A story of En. Shuhaimi and Pn Hidayah Cynthia in Berita Harian
Last year, as you all know, I went to House Ear Clinic, Los Angeles, CA with one objective, ie, to remove the entire tumor. The fact that I raise fund for my surgery in order to remove the entire tumor at USA had captured the eyes of En Shuhaimi and Pn Hidayah Cynthia.
I do realise that not so many people willing to share their story. When I try to search about the illness, the cure, the medicine makes me wonder, am I the only one who have the tumor? Why me? Only then, when the story come out, so many people has come forward and say that, "Hei, I also have the same problem..what to do?"
Only those with a brave and strong heart willing to do this. And because of this, there are many ways to share it.
Yvonne, you have a strong heart!
Friday, 17 February 2012
Facial nerve
The image below is a facial nerve, which invole muscle for taste & sensation, facial expression for smiling, eye movement & etc.
There are three types of surgery for Acoustic Neuroma. Translabyrinthine, Middle Fossa, & Retrosigmoid. Every approach has the risks. HEI uses Translabyrinthine surgery approach for my case.
After a surgery of Acoustic Neuroma, there is possibly temporary facial paralysis. Some call it as Bell Palsy. Bell Palsy can happen because of infection & etc, and one of it is brain tumor (Acoustic Neuroma). It took experience and skill neurosurgeon when it involve brain tumor.
The tumor is a slow-growing. It will affect the surrounding nerve as the tumor growth. However, at HEI, size is not a problem for them because they are experience in this field and focus to do research for future generation. HEI pioneer in ENT since 1946, a private non-profit organisation.
There are three types of surgery for Acoustic Neuroma. Translabyrinthine, Middle Fossa, & Retrosigmoid. Every approach has the risks. HEI uses Translabyrinthine surgery approach for my case.
After a surgery of Acoustic Neuroma, there is possibly temporary facial paralysis. Some call it as Bell Palsy. Bell Palsy can happen because of infection & etc, and one of it is brain tumor (Acoustic Neuroma). It took experience and skill neurosurgeon when it involve brain tumor.
The tumor is a slow-growing. It will affect the surrounding nerve as the tumor growth. However, at HEI, size is not a problem for them because they are experience in this field and focus to do research for future generation. HEI pioneer in ENT since 1946, a private non-profit organisation.
Eye closure
Hello guys. How are you guys today? I hope you guys are in good conditions.
After a few months of my surgery in USA, I can slowly close my right eye 100%. I cannot close my right eye even after 10 months of the first surgery. Exercises and physiotherapy really works. The surgeon (at HEI) has minimises this risk.
The surgeon exercises his judgement based on his expertise and experience. My right ear hearing was already loss few years ago even before the surgery and I only notice it when I borrowed an earphone from my friend.
After a few months of my surgery in USA, I can slowly close my right eye 100%. I cannot close my right eye even after 10 months of the first surgery. Exercises and physiotherapy really works. The surgeon (at HEI) has minimises this risk.
The surgeon exercises his judgement based on his expertise and experience. My right ear hearing was already loss few years ago even before the surgery and I only notice it when I borrowed an earphone from my friend.
Sunday, 15 January 2012
Mark it in your diary
Recently, I have added new links that I want to share with you.
First, as you can see, I have added Acoustic Neuroma Association, where you can also download all the possible information associated with brain tumor and Acoustic Neuroma as you wish. There is a video explaining in details of Acoustic Neuroma. This association is recited in USA. I am already a member. This support group really helpful in order for me to cope with the changes in the future. In fact, most of the informations that we can get through are from the doctors and patients point of view. Although I am in other geographical area, with internet, this support group can across the borders and oceans. Is it fantastic?
Second, as you look at the right corner and scroll down a bit, I also have added another link and willing to share with all of you, about this blog.. A journey to strive and to cure for specific conditions. Mark it in your diary, as it will give you a lot of benefits for now and for your future.
Cheers!
First, as you can see, I have added Acoustic Neuroma Association, where you can also download all the possible information associated with brain tumor and Acoustic Neuroma as you wish. There is a video explaining in details of Acoustic Neuroma. This association is recited in USA. I am already a member. This support group really helpful in order for me to cope with the changes in the future. In fact, most of the informations that we can get through are from the doctors and patients point of view. Although I am in other geographical area, with internet, this support group can across the borders and oceans. Is it fantastic?
Second, as you look at the right corner and scroll down a bit, I also have added another link and willing to share with all of you, about this blog.. A journey to strive and to cure for specific conditions. Mark it in your diary, as it will give you a lot of benefits for now and for your future.
Cheers!
Subscribe to:
Posts (Atom)